It was a mild Wednesday night in May, 2008, about 8.30pm, my wife and I had just put my 5 year old Son, Kaya to bed and our then 6 month old son had just settled. We were ready to relax for the evening when we had a phone call that would change our lives forever. It was our pediatrician who we had taken Kaya to for some tests, as he was showing signs of being physically slower than his peers.
I will never forget his words, he started to explain that Kaya has a problem with his muscles and that he had diagnosed him with Duchenne Muscular Dystrophy (DMD). I said,”OK doc, what medication does he need” without understanding what DMD is. The doctor replied that there is no medication and that there is no cure. He went on to tell me that kids with DMD have a life expectancy of around 20-30 years of age.
This was all so sudden, I could not believe what I was hearing, my son, so happy and healthy was struck down with this terrible illness.
We now know that DMD is a disease that generally affects young boys. DMD causes the muscles to lose strength over time, which eventually impacts on the major body organs and unfortunately leads to a shortened life.
Once my wife and I understood what DMD was and got through the initial devastation, it was time to do something about it. This is where my great friend and colleague Sam Quattrone came into the picture. Sam suggested a Fun Run to raise funds for Muscular Dystrophy research. This was in October 2008. Within four months, on 15th February, 2009, the inaugural Run for Strength was held at Albert park Lake with over 400 participants, volunteers and sponsors who raised $40,196.
After a fantastic first up effort, both Sam and I are committed to make ‘Run for Strength’ an annual event to raise further funds and awareness of Muscular Dystrophy.
It is only possible to hold such an event with the generosity and selflessness of our sponsors, volunteers and participants. It is for this reason we ask if you are able to join us as a sponsor for our 2010 event and together we can fight for a cure.
HELP US MAKE A DIFFERENCE !!!